IDEAS Kids

Parents of Children with Inflammatory Bowel Disease (IBD)

The following sites may help you better understand what your child is experiencing, how to seek support for them (and yourself!), and their healthcare needs.
A Guide for Parents (CCFA)
You have just learned that your child has a chronic form of inflammatory bowel disease (either ulcerative colitis or Crohn’s disease); here’s some helpful information!

Starlight Stories

My Crohn’s and Colitis Care My Crohn’s and Colitis Care is a new guide for people with Inflammatory Bowel Disease which identifies the top 10 essentials of a good IBD service, outlining how you can work in partnership with the health professionals supporting you to manage your condition and care.

Inflammatory Bowel Disease (Kids Health)
It’s estimated that up to 1 million Americans have inflammatory bowel disease. IBD occurs most frequently in people ages 15 to 30, but it can also affect younger children and older people.

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Medical Issues Video (CCFA)
This program discusses medical issues affecting families and children living with Crohn’s and ulcerative colitis, types of inflammatory bowel disease.

 

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Treating Children and Adolescents (CCFA)
Children require individualized treatment that takes into account the specific disease manifestations (location of inflammation in the intestines, duration, prior response to therapy), the psychosocial adaptation of the child and family, and the child’s age and size.

 

KIDS Celiac Disease

The following links provide information about everything from symptoms to treatments to how to talk to your friends about Celiac Disease.

Celiac Disease (Kids Health)

Have you ever eaten gluten? No, not glue – gluten! If you’ve ever eaten a piece of bread, a slice of pizza, or a bowl of cereal, chances are you have.

 

Celiacs, Inc.

The symptoms of celiac disease in children typically become apparent three to five months after first consuming gluten- containing foods although for some few cases, the interval may be as short as one month. Several of the experts on infant feeding advise that solid foods should not be introduced to a baby’s diet until nearly five months old and that gluten-containing cereal should be avoided for the first six months of life.

Kids IBD

The following links provide information about everything from symptoms to treatments to how to talk to your friends about IBD.

Inflammatory Bowel Disease (Kids Health)

When was the last time you had a stomachache? It’s normal for all kids to get bellyaches once in a while. But some kids get bad stomach pain all the time. They are tired and even feel like they might throw up. Some of these kids may have inflammatory bowel disease (or IBD).

http://www.kidshealth.org/kid/health_problems/stomach/IBD.html

IBD Concerns For Young People (NACC)

Having Crohn’s Disease or Ulcerative Colitis may be difficult to handle at times. You can have times when you feel okay, but sometimes having IBD can make you feel ill, confused and miserable. Most young people with IBD experience at least some of these feelings.

http://www.nacc.org.uk/downloads/factsheets/FAQteenagers.pdf

Kids and Inflammatory Bowel Disease (CCFC)

Find out about IBD

http://www.ccfc.ca/English/info/brochures/KidsE2002.pdf

Kids Coping Strategies Video (CCFA)

Listen to a panel of children and teenagers with Crohn’s and ulcerative colitis, discuss how their IBD has affected their lives and the coping strategies they used to manage their disease.

http://www.ucandcrohns.org/howtodeal.html

Guts & Glory Walk

The Rocky Mountain Chapter of the Crohn’s & Colitis Foundation of America (CCFA) will hold its first annual Guts & Glory Walk on Saturday, Aug. 4, at Two Rivers Park in Glenwood Springs to raise funds for research, education and support services within the Rocky Mountain region.

http://www.postindependent.com/article/

Youtube
Lynn Walker PhD, is Professor of Pediatrics, and Director, Division of Adolescent Medicine at Vanderbilt University in Nashville, TN. Dr. Walker is a behavioral scientist, clinician, and educator. Here she discusses strategies for helping families and children or adolescents deal with managing chronic pain conditions that affect the bowel such as IBS or IBD. Managing pain, going to school, dealing with bathroom issues, and explaining what is wrong to peers are all challenging issues that confront the patient and the family.