For Immediate Release
June 3, 2008
CCFC Launches New Website Aimed at Bringing Together Youth Affected by “Invisible” Disease.
Toronto . . . The Crohn’s and Colitis Foundation of Canada (CCFC) is pleased to announce the launch of a new website to improve communication among youth affected by Inflammatory Bowel Disease (IBD).
“There are nearly 200,000 Canadians suffering with IBD. Many of them are under the age of 25,” says Kaella Carr, Chair of the Youth Advisory Council for the CCFC. “This website is what youth across the country have been asking for. It provides a place where they can go to connect with others, share their stories and get advice on what to tell other people in their life who may have questions about Crohn’s or Colitis. It also gives them a connection to the Foundation which will ultimately engage them as volunteers and help bring us all closer to finding the cure.”
The Website features:
- “Gut of the Month”: a profile on a youth supporter between 15-25 years of age who has an amazing story to tell.
- “Interactive”: a section where youth can share stories, watch videos, read jokes and find links to helpful articles.
- “Tip Sheets”: educational information sheets on how to live with Inflammatory Bowel Disease: how to tell your teachers, what to share when you’re on a date etc.
- “Get on the Map”: a feature enabling youth to get on the map and find out where others affected with IBD can be found.
- “Get Involved”: a volunteer focused section that details ways for youth to volunteer, fundraise and speak up for their cause.
- “News and Events”: upcoming CCFC fundraisers, events and new stories about youth.
The Gutsy Generation is made up of 13 youth from across Canada chosen by the CCFC to be the voice of today’s youth. Their goal is to increase youth involvement in the foundation by 50 percent over the next two years.
CCFC is a national voluntary, not-for-profit, medical research foundation dedicated to finding the cure for Crohn’s disease and ulcerative colitis, commonly referred to as IBD. To achieve its mission, the Foundation is committed to raising funds for medical research; in fact, CCFC invests over 80% of its fundraising proceeds into research and education.
Carr says “There is no cause and no cure for Inflammatory Bowel Disease but with fundraising and research we know we can change that! Some people say youth are the future, but I believe they are the present. This website has the power to change the lives of youth living with this invisible disease.”
For more information, please contact:
John Branton at Crohn’s and Colitis Foundation of Canada
Tel: (416) 920-5035 (ext. 223); Fax: (416) 929-0364; Email:[email protected]
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The annual Youth Rally in Boulder, Colorado, linked with the United Ostomy Associations of America (UOAA), is from July 7th to July 11th.
For Vancouver mountaineer Rob Hill, it’s six down and one to go. In climbing circles, that “one” is the ultimate high: Mount Everest. The other six are the summits of the tallest peaks on the continents where they stand. By cresting all seven, Hill aims to bring attention to Crohn’s disease, a medical condition from which he suffers and for which there is no known cause or cure. Significantly more North Americans suffer from Crohn’s and related intestinal bowel disorders (IBD), such as colitis, than those living in other parts of the world. And the numbers keep growing. At last count, more than 100,000 Canadians were affected by this mysterious ailment. (excerpt from Georgia Strait Magazine Feature Article: One peak just isn’t enough)
Rob will also be in the TV media appearing on the BC Almanac with Mark Forsythe on June 12, 2007!
IDEAS is excited to announce that the IDEAS KIDS website became active on June 5, 2007!
If you wish to support iDEAS KiDS or join the society please visit the CanadaHelps link below. As little as a $10 donation makes you a member of IDEAS and iDEAS KiDS.
In addition to the kids-specific site, IDEAS also launched the No Guts Know Glory website back in May. This site will keep everyone interested in following IDEAS founder, Robert Hill, along to the top of the last of his climbs in 2008. Rob’s Seven Summits quest to become the first Crohn’s Disease survivor and ostomate to stand on the highest point of every continent has been going on for 5 years now. All that remains is the highest: Mount Everest in the Himalaya.