IDEAS Kids
Celiac Disease in Children

Inside Look at Celiac Disease in Children

Celiac disease is an autoimmune disorder that causes inflammation and damage to the small intestine when a person consumes gluten-containing food.

Gluten, a term we hear about every day, is a protein found in wheat, barley and rye. When an individual who is prone to celiac disease ingests gluten, the body mounts an immune response directed at the small intestine.

The result is inflammation and injury to the villi extremely tiny, finger-like projections in the lining of the small intestine that increase the surface area and promote absorption of nutrients. The damage to villi affects nutrient absorption and leads to a multitude of symptoms.

Who Develops Celiac Disease?

It seems like we can’t go to any restaurant or supermarket without seeing or hearing the term “gluten-free.” The phrase is synonymous now with healthy eating. But who really needs to go gluten-free? It’s those who have been diagnosed with celiac disease.

Celiac disease has been reported in children of all ethnicities, though the disease is relatively more common in those with Caucasian roots. It is believed about a third of the Caucasian population have genes that increase susceptibility to celiac disease. However, only 3 percent of those actually develop the condition.

An estimated 1 out of 100 people have celiac disease in the U.S. To develop the condition, one needs to have the genetic susceptibility, exposure to gluten and variations in the immune system that are controlled by other secondary susceptibility genes. In other words, it has to be the “perfect storm” scenario.

Celiac disease also has a hereditary component, which puts children who have first-degree relatives, such as parents or siblings, with celiac disease at higher risk for developing the disease.

Read More: Inside Look at Celiac Disease in Children

Teens and Inflammatory Bowel Disease (IBD)

The following links provide information about everything from symptoms to treatments, to how to talk to your friends about IBD. Many of them address the unique concerns teenagers may face.

New survey of pupils reveals ignorance of Crohn’s and Colitis symptoms amongst teachers

Crohn’s Disease or Ulcerative Colitis are embarrassing and difficult illnesses to have. Most people have times when they feel okay, but sometimes you may have lots of feelings about it that make you miserable or confused and which perhaps you keep to yourself. Most teenagers with IBD experience at least some of these concerns.

Inflammatory Bowel Disease (Teens Health)

IBD is a general term that refers to illnesses that cause chronic inflammation in the intestines. If you’re having diarrhea, stomach cramps, and other symptoms that make you question your digestion, you may want to learn more about the digestive system and IBD, as well as other digestive conditions.

Inflammatory Bowel Disease in Children and Adolescents (CDHNF Kids IBD)

This site includes a information on IBD, genetics, diagnostics, medical therapy, diet and nutrition, psychosocial issues, surgery, clinical trials and vaccines.

Living with your J-Pouch (The J-Pouch Group)

An illustrated overview of the surgical procedure. This section is intended to address some of the surgical questions that face a patient who is about to undergo J-pouch surgery.

Teen Guide (CCFA)

Dealing with Crohn’s and Colitis.

UC and Crohn’s
We know how difficult it is to live with Ulcerative Colitis or Crohn’s. Did you know? Starbright World® online community is a safe, private, moderated social network for teens affected by medical conditions – like UC or Crohn’s. If you’re a teenager affected by IBD, whether it’s your illness or a sibling’s, you can join (for free) and meet other teens going through similar journeys. SBW is a safe, fun place to chat, vent, ask advice and provide support for other teens.

Rob Hill at Ostomy camp and the Youth Rally

Rob Hill was busy in July volunteering at the Canadian Ostomy Youth Camp in Kananaskis, Alberta and the Youth Rally. These two camps provide an opportunity for children and youth in Canada and the USA who have had, or may have to have, bowel or bladder diversionary surgeries an opportunity to get together with other kids facing similar issues. Rob has been a long-time supporter of both events. Recently, Rob’s charitable organization, IDEAS, has got behind these events in a big way and found a way to build on them.

We wanted to find a way that would build on the valuable life skills these two camps offer their participants,” said Rob. “So we’ve provided scholarship opportunities for the Canadian camp kids, between the ages of 16 and 19, to attend a Counselor in Training program so they can learn to better mentor and move on to a staff/volunteer role at camp. We’ve also been able to coordinate a partnership with Youth Rally that allowed us to bring Carly Lindsay and Clinton Shard, both IBD Adventures Everest trek veterans to speak to the campers about their experiences living with inflammatory bowel disease and seeing the top of the world.

Read More: Ostomy camp and the Youth Rally